John Jerome had recently run a triathlon when he noticed his balance was getting worse and his speech slowing down.
It was the latest indication that something was wrong.
He had already suffered from knee pain and problems running in 1999, and had knee surgery later that year.
But it wasn't until he saw a neurologist in 2003 that the true scope of his ailment came into focus he was diagnosed with amyotrophic lateral sclerosis, a progressive motor neuron disease that affects the cells that control muscles.
Most people with ALS, or Lou Gehrig's disease, die within three to five years of diagnosis. But Jerome is still alive and active after 16 years, working two mornings a week at Yarbrough Tennis Center.
"Some people go real fast and they die, and some like me, and Stephen Hawking, have lived a long time. But without money, were not going to find a cure," said Jerome. "I dont know what Id be doing if I wasnt here. Im very fortunate they still let me work here."
After being diagnosed, Jerome regularly made the drive to Atlanta to get checkups at the Emory ALS Center, one of the most critical ALS research facilities in the nation.
It was there in 2010 that he enrolled in phase one of an experimental stem cell trial, which involved two surgeries where doctors injected more than a million stem cells directly into his spinal cord.
"I wanted to do more than just sit around and waste away. I wanted to do my part to try to find a cure, so I did the trial," he said. "I did not get better, but I believe I am getting worse at a slower rate. But since I was slow progressing anyway, its hard to say whether Im getting worse even slower now."
Emory conducted a second phase of the trial that Jerome didn't take part in before funding ran out. But it is research like that Jerome hopes will eventually lead to a cure for ALS, which spurred him to take action on his own to help out any way he could.
Last year, he spearheaded the first John Jerome "Acing ALS' Tennis Benefit to raise money for Emory ALS Center, which offers a clinic every month where ALS patients can receive care.
"John did this on his own," said Bret Peterson, the Tennis Center events manager who works with Jerome. "He came to me and we figured this thing out and put it on. Hes the driving force behind that. Theres not somebody else thats pushing him to do it. Its a big credit to him, really."
Jerome will be hosting the second annual Acing ALS Tennis Benefit on Oct. 4 at the Yarbrough Tennis Center. It's an event that he hopes will raise awareness about ALS and money for research that could one day lead to a cure.
"When they did the ice bucket challenge, that raised $100 million or more, and it did bring a lot of awareness to everybody hearing about ALS, but its dying down," he said. "Without people really donating money, funds may dry up and we may not find a cure.
"Really, I just want people to be aware of ALS and really help us find a cure when every dollar counts."
The first benefit raised $16,000, with more than 70 people signing up to play tennis. Jerome is hoping to raise even more this year. Emory ALS Center will receive all of the funds raised from the event.
The tennis benefit will be held from 6 to 9 p.m. on Oct. 4, and players of all ages and levels are welcome to participate. Snacks, drinks and pizza will be provided by the Auburn Community Tennis Association, and prizes will be given in fastest serve competitions.
It meant a great deal to see so many people in the Auburn community come out and support the effort to find a cure for ALS, Jerome said.
"Man, I got choked up last year. Bret had me say a few words and it really meant a lot. Im even getting choked up talking about it now, and it hasnt even happened," he said. "ALS doesnt get the funding of cancer and stuff like that, but its very important to raise money."
Read the original:
Fighting for a cure: Tennis benefit to fund ALS research - Auburn Villager
- Vertex invests in gene therapy manufacturing - BioPharma-Reporter.com - November 10th, 2019
- [Weekly Funding Roundup] Startups raised $53.3M, a drop of 75.8 pc from last week - YourStory - November 10th, 2019
- Pet Care Startup Wiggles Raises $1 Mn, Will Expand Its Footprint - Inc42 Media - November 10th, 2019
- Stem Cell Research and Hair Transplants How Far Have We Come? - Science Times - October 31st, 2019
- New NCCN Guidelines Debut to Manage Complications and Improve Readiness for Stem Cell Transplant Recipients - Yahoo Finance - October 31st, 2019
- Animal Stem Cell Therapy Market Sales Overview, Market Size, Opportunities, Demands, Market Share and Growth Analysis 2017 2025 - Health News Office - October 29th, 2019
- Acorn Biolabs partners with Executive Health Centre to become first clinic in North America to offer non-invasive stem cell collection - Canada... - October 24th, 2019
- Brooks Koepka slips on wet concrete, withdraws from CJ Cup - Golfweek - October 21st, 2019
- New research center to explore muscle health and disease - Newswise - October 18th, 2019
- Opinion: Neighborhood Health Clinic contributes to the overall wellbeing of Naples - Naples Daily News - October 18th, 2019
- Magenta Therapeutics Appoints Jan Pinkas as Senior Vice President, Head of Translational Sciences and Announces Transition of Chief Scientific Officer... - October 18th, 2019
- The global wound care market is growing at a CAGR of over 5% during the forecast period20182024 - Yahoo Finance - October 15th, 2019
- Saving rhinos with stem cells; $5.5 billion stem cell ballot measure readied - The San Diego Union-Tribune - October 12th, 2019
- BEYOND LOCAL: Expert recommends 'path of cautious optimism' about the future of stem cell treatment - ThoroldNews.com - October 12th, 2019
- Microbiome research needs a gut check - The Globe and Mail - October 12th, 2019
- BEYOND LOCAL: Expert recommends 'path of cautious optimism' about the future of stem cell treatment - GuelphToday - October 11th, 2019
- Biohack Your Way To Beauty And Health Using Your DNA And Stem Cells At These Wellness Retreats Around The World - Singapore Tatler - October 11th, 2019
- I donated my embryos years ago. Now I'm friends with the mom who received them - Yahoo Lifestyle - October 11th, 2019
- Man with at least 17 children sues fertility clinic for being 'incredibly irresponsible' with his sperm - Genetic Literacy Project - October 11th, 2019
- Senior, caregivers conference and expo coming Oct. 11 - The Daily Courier - October 9th, 2019
- Stem cell research is a good thing | Opinion - Chart - October 6th, 2019
- Regenerative medicine today: Are diabetes and vascular disease treatments ready for the clinic? - Science Magazine - October 5th, 2019
- Dr Naveen Pemmaraju Outlines the Symptoms of Myelofibrosis - AJMC.com Managed Markets Network - October 5th, 2019
- Businesses Sponsor Another Season Of Movies In The Park Square - Osprey Observer - October 5th, 2019
- Stem Cell Manufacturing | Research Report Overview By Top Key Players, Opportunities, Key Drivers, Application and Regional Outlook To 2027 -... - October 5th, 2019
- Sigilon Therapeutics approaches the clinic - Vantage - September 20th, 2019
- Research report explores the Animal Stem Cell Therapy Market - Zebvo - September 20th, 2019
- 'It feels amazing,' says Alabama man now first in the state to be free of sickle cell after gene therapy - Face2Face Africa - September 20th, 2019
- Michael Schumacher Is 'Conscious', Released From Paris Hospital After Experimental Treatment - International Business Times - September 20th, 2019
- Living With a Secondary Blood Cancer - Curetoday.com - September 20th, 2019
- Scientists Discover New Strategy That May Protect Against Hair-Loss During Cancer Treatments - Good News Network - September 20th, 2019
- Clinical trial of stem cell therapy for traumatic spinal ... - September 17th, 2019
- Autologous stem cell transplant - Type - Mayo Clinic - June 1st, 2019
- Stem cell therapy for hip | Mayo Clinic Connect - May 11th, 2019
- Next Generation Stem Cell - Professional medical clinic - April 7th, 2019
- N.Y. Attorney General Sues Manhattan Stem Cell Clinic ... - April 6th, 2019
- ThriveMD | Colorado's Experts in Stem Cells & Regenerative ... - March 29th, 2019
- Top Rated Stem Cell Therapy Clinic in Denver & Vail ... - March 16th, 2019
- South Florida Stem Cell Center | Regenerative Therapy Clinic - March 16th, 2019
- Mayo Clinic Q and A: Stem cell therapy for arthritis ... - March 7th, 2019
- COPD and stem cell treatment | Mayo Clinic Connect - March 7th, 2019
- GARM Stem Cell Clinic | Roatan - March 2nd, 2019
- Stem Cell Clinic Treatment Jupiter FL Alternative ... - March 1st, 2019
- Is This Stem-Cell Clinic Really Making Cancer Vaccines ... - February 12th, 2019
- Stem cells treatment clinic - Effective stem cell treatment - February 1st, 2019
- Vitality Healthcare - Home - January 28th, 2019
- About Us - U.S. Stem Cell Clinic - December 19th, 2018
- Brandon Stem Cell Clinic - December 19th, 2018
- Illinois Stem Cell Clinic - Illinois Stem Cell Clinic ... - October 5th, 2018
- Wisconsin Stem Cell Clinic - September 19th, 2018
- FDA Response - U.S. Stem Cell Clinic - June 29th, 2018
- World Stem Cell Clinic - For a better quality of life | WSCC - June 18th, 2018
- Stem Cell Clinic Palmetto - Stem Cell Therapy Greenwood ... - June 18th, 2018
- Top Stem Cell Therapy Clinic in Vail & Denver, Colorado ... - September 20th, 2017
- Stem Cell Therapy - American Regenerative Clinic, Stem ... - September 19th, 2017
- Zika kills brain cancer cells, may find use as therapy - The San Diego Union-Tribune - September 5th, 2017
- FDA Reaffirms Its Commitment to the Approval of Stem Cell Therapies Amidst Enforcement Actions Against ... - Lexology (registration) - September 5th, 2017
- US FDA steps up enforcement against unscrupulous stem cell firms - BioPharma-Reporter.com - September 3rd, 2017
- FDA Reaffirms Its Commitment to the Approval of Stem Cell Therapies Amidst Enforcement Actions Against ... - JD Supra (press release) - September 3rd, 2017
- Around the world - Bend Bulletin - August 29th, 2017
- Daily on Healthcare: Lack of bare counties doesn't solve Obamacare's problems - Washington Examiner - August 29th, 2017
- How a UCSF study could change the lives of babies in the womb and maybe help California's stem cell program in ... - San Francisco Business Times - August 25th, 2017
- Stem Cell Study for Dogs - MyWabashValley - August 23rd, 2017
- Joint Preservation vs. Replacement: What's Your Best Option? - Health Essentials from Cleveland Clinic (blog) - August 23rd, 2017
- Bio-inspired Materials Give Boost to Regenerative Medicine - Bioscience Technology - August 22nd, 2017
- Fraud Alert! Unproven Stem Cell Use Prompts International Call to Action - American Council on Science and Health - August 20th, 2017
- Friends come together for benefit concert for Joni Eickhoff - Grand Island Independent - August 16th, 2017
- 'Unexpected fountain of youth' found in cardiac stem cells, researcher says - FOX31 Denver - August 16th, 2017
- New Mayo Clinic facility aims to increase lungs available for transplant - First Coast News - August 10th, 2017
- Surrey teen rallies stem cell donors to help with 'desperate' need for South Asians - Surrey Now-Leader - August 2nd, 2017
- Tampa Florida Stem Cell Clinic - Don't Operate - Regenerate - July 12th, 2017
- Dorothy Jean Kercheval Garrigan - The Messenger (subscription) - July 12th, 2017
- Private clinics are peddling untested stem cell treatments it's unethical and dangerous - Yahoo News UK - July 9th, 2017
- Private clinics' unproven stem cell treatment is unsafe and unethical ... - Business Standard - July 9th, 2017
- Stem Cells Play a Role in Acute Myeloid Leukemia Relapse - Technology Networks - June 30th, 2017
- NBA Star John Salley Partners with Stem Cell Centers of Excellence ... - Market Exclusive - June 30th, 2017
- Making Babies, No Sex Necessary - The Atlantic - June 28th, 2017
- Stem Cell Stem Cell Treatments by Clinic 42 - June 25th, 2017
- Powerful boost for bad skin days - Inquirer.net - June 22nd, 2017
- Here's Why US Stem Cell Inc (OTCMKTS:USRM) Shares Just ... - The Oracle Dispatch - June 21st, 2017